Michelle and frankie were both just on ITV news. Confirming what I was saying before all efforts after frankie gets her treatment will be going on getting the nhs to hurry up with offering proton beam therapy in the UK
Great stuff. Really hope that treatment delivers now and happier times are ahead for her and her family. Well done Sadie you have played a huge role in getting funds.
Update: frankie Rose had to have some radiotherapy today that the hospital thought was more of a priority and the surgery to relieve some pressure on the brain has now been scheduled for tomorrow morning, the family are checked into kings this evening.
Update: frankie Rose had to have some radiotherapy today that the hospital thought was more of a priority and the surgery to relieve some pressure on the brain has now been scheduled for tomorrow morning, the family are checked into kings this evening.
I'm sure I speak for all Lifers when I say we'll be thinking of her & her family tomorrow.
Really can't imagine what that poor family are going through right now. Not a religious man, but if there is "someone up there" I hope they are listening to all the thoughts and prayers for Frankie and her family.
The Op went well she has a shunt in which seems to be working at keeping the fluid off the brain for the time being, there is a meeting tomorrow with all the big bods and parents to discuss the next step. Thank you all for your continuous support x
the lady, my pal Mel Hudson, who promised to have all of her very long hair cut off for frankie Rose kept to her word and even had her initials sketched
Excellent news, the fundraiser went really well on Saturday night, raising what looks like over £4k, still waiting for an official amount from all auction monies. The donations from those on here really really helped thank you all so much. Frankie Rose was released from the hospital Saturday morning so attended the evening herself, she sang beautifully on the karaoke and her rendition of "something inside so strong" got comments from surrouning neighbours it was so brilliant.
The hospital said that the shunt is working so well controlling the fluid that she can now fly, so the family are going with their original specialist recommendation and are flying to the treatment centre in USA, they have raised enough funds to all go as a family too. They are flying out at 6am tomorrow morning and she is starting her treatment on Monday, they will be spending Christmas together in the states and will be back, hopefully with a cured little girl in the new year. It's still a long road ahead, but one with renewed hope and the family are very grateful, beyond words that so many people have come together to give them this hope. Thank you on behalf of all the Lea family. God Bless you all! X
So the practice run is finished, the doctors and nursers played and sung the frozen soundtrack to her for 45 minutes and she was rewarded with a bravery bead xx she said the hardest part was not being able to sing along........... God I love this girl xxxx she's a true lioness xxxx bring on tomorrow!
Comments
Thanks
Hope you can give us some more good news soon
The hospital said that the shunt is working so well controlling the fluid that she can now fly, so the family are going with their original specialist recommendation and are flying to the treatment centre in USA, they have raised enough funds to all go as a family too. They are flying out at 6am tomorrow morning and she is starting her treatment on Monday, they will be spending Christmas together in the states and will be back, hopefully with a cured little girl in the new year. It's still a long road ahead, but one with renewed hope and the family are very grateful, beyond words that so many people have come together to give them this hope. Thank you on behalf of all the Lea family. God Bless you all! X
Staring adversity full in the face, putting up a fair fight, and winning through in the end.
Fingers crossed for the USA treatment.
Great news Sadie and look forward to hearing how they are all getting on.
Found this link
So the practice run is finished, the doctors and nursers played and sung the frozen soundtrack to her for 45 minutes and she was rewarded with a bravery bead xx she said the hardest part was not being able to sing along........... God I love this girl xxxx she's a true lioness xxxx bring on tomorrow!