On behalf of all of my family, I just wanted to send a massive thank you to all of you lovely lot who signed the petition when I initially posted this discussion.
The Cystic Fibrosis Trust has just announced that the NHS, NICE and Vertex have reached a commercial agreement to keep the drug Kaftrio on the NHS list.
This is obviously amazing news for us as a family and also for the young babies being born, like Archie, with this condition.
England can go and get pegged five zero tonight for all I care!
Speaking for myself, you should feel free to take a bow, instead of thanking us, without yourself and others affected taking up the fight, nothing would have happened.
Comments
On behalf of all of my family, I just wanted to send a massive thank you to all of you lovely lot who signed the petition when I initially posted this discussion.
England can go and get pegged five zero tonight for all I care!
The good old NHS comes up trumps again !
Superb!
What a beautiful photo of Archie. He has a lovely smile.
You absolute superstar 🤩🥰❤️