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Lifers' Cancer Updates - Some hopeful news from Palarsehater (p75)
Comments
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Redman, Lancs Lads thank you for the updates and best wishes to Mr F. good luck to you all .KBslittlesis said:@redman @lancashire lad thank you so much for the updates ♥️
@Fanny Fanackapan sending love to you & Mr F xxxxx2 -
This maybe totally inappropriate for this thread so admin please feel free to remove if so.
Over a year ago I was fortunate that a prostate cancer scare turned out to be a prostate virus. However, I am acutely aware that prostate cancer needs greater awareness and lobbying of the health services and remain linked in to various prostate charities and organisations including Prostate Cancer Research, who are lobbying Govt for greater prostate screening.
To help them, they are asking those with a prostate cancer diagnosis to undertake a small survey and i quote
"We have been gathering data far and wide to feed into this report* (see below). However, one area where we need more information is around the experience of those with a diagnosis of prostate cancer, as well as partners, carers and close family/ friends. We have designed a short survey - the results of which will flow into this socio-economic report - and will help us make the case as to why it is so important that we start screening for prostate cancer.
If you have had a diagnosis of prostate cancer or are the partner, carer, close family or close friend of someone who has had a diagnosis we need your help. If you have 5-10 minutes, please do answer our short survey and help us make the case for prostate cancer screening to the government even stronger.
You can complete the survey here: https://www.smartsurvey.co.uk/s/ProstateCancerExperienceSurvey"
*"In an earlier email we mentioned a socio-economic report that we are developing. This report is nearing completion. We intend to present the report's findings to the UK National Screening Committee and then to MPs in October."
Apologies for the length of this and if it is felt inappropriate
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Now get into the Wetherspoons for a celebratory drinkRadostanradical said:Happy for you Redman and sending my best to all those fighting this dreadful disease.
I had a scare a few weeks back where i went in for an abnormal growth/mole (no kenneth williams faces please) I assumed it would just be a looks fine but they sent me away for a month to treat with a cream to see if it looked agitated afterwards. I'm 34 with two young kids and it was incredibly worrying, very fortunate that after a month they took a look and told me it looked benign and was fine still very worrying during the time.
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Stay strong my friend. I know what you’re going through.I had a 17hour cancer operation Dec21 to remove cancer in the bowel, Cancer in my Right kidney which they removed and have had plastic grafts put into my abodomen as I had cancer in the iliac artery in the Leg.Have lost a kidney have a stoma bag and spent 3 months in Charing Cross hospital. Also had 20 Chemo sessions before operation.I’m still here although I will never be as good made me, but I’m making the most of it. 3 years on I’m still going strong.Your family will okay an important part going through this but please all stay strong. As for you my friend you will be ok.24
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I went to see my Oncologist on Friday, after having my operation cancelled. We sat and discussed different options of chemo that might not have as detrimental effect on me as it did last September. This would involve a different drug given as a 5 hr infusion in my chest, then a break for 3 weeks before going back to hospital again for another 5 hr infusion. This would happen 4 times.
Sadly, there is no guarantee this will work, and on Friday I was not only told, but, for the first time ever, shown, that whilst the tumour hasn't spread it has grown to the size of a golf ball in my pelvic region. This is what is now causing the pain I experience on a daily basis, with my pain killers now increased, to help me cope.
Basically I'm back to where I was July 23 when first diagnosed. If the chemo works they'll then operate to remove the rest of it, if not, then they aren't sure what else can be done.
It was strange staring at my tumour, it's a black and white mass, close to my prostrate.
I had an immense feeling of hatred for the tumour, yet, I was hating my own body!
I'm trying to stay positive and concentrating my MH on the tumour, with everything I can.
I'm going to give it my best shot and hope the chemo works with me and not against me.
In the meantime I hope CAFC keep winning and I can win alongside them
Live, Love, Laugh and Be Happy xx
##fxxxcancer
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I remember looking at my bowel cancer live on a tv screen. It was a shock at the time but it was successfully removed. Try to stay positive and let’s hope The Addicks keep winning!!6
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That must be so strange to see @Redmidland
My love to you ♥️2 -
Best wishes to you! Hoping for the best!Redmidland said:I went to see my Oncologist on Friday, after having my operation cancelled. We sat and discussed different options of chemo that might not have as detrimental effect on me as it did last September. This would involve a different drug given as a 5 hr infusion in my chest, then a break for 3 weeks before going back to hospital again for another 5 hr infusion. This would happen 4 times.
Sadly, there is no guarantee this will work, and on Friday I was not only told, but, for the first time ever, shown, that whilst the tumour hasn't spread it has grown to the size of a golf ball in my pelvic region. This is what is now causing the pain I experience on a daily basis, with my pain killers now increased, to help me cope.
Basically I'm back to where I was July 23 when first diagnosed. If the chemo works they'll then operate to remove the rest of it, if not, then they aren't sure what else can be done.
It was strange staring at my tumour, it's a black and white mass, close to my prostrate.
I had an immense feeling of hatred for the tumour, yet, I was hating my own body!
I'm trying to stay positive and concentrating my MH on the tumour, with everything I can.
I'm going to give it my best shot and hope the chemo works with me and not against me.
In the meantime I hope CAFC keep winning and I can win alongside them
Live, Love, Laugh and Be Happy xx
##fxxxcancer2 -
Best wishes, thoughts and prayers with you. Stay positive3
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Best wishes, Redmidland.2
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Best wishes RM. Stay strong.2
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Seeing it must be a strange feeling but now you know what it looks like you can visualise it shrinking with every treatment you have x2
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good luck Malc
unfortunately the Lymphoma has beaten The Lass who is now just being kept comfortable, I had hoped that I would get her home but I think she will remain in Southampton Hospital where I shall go tomorrow and stay until the end, unless of course it gets better for a while, but I don't think so. BASTARD DISEASE2 -
So sorry to hear that @lancashire lad3
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Oh, Lancs, that is heartbreaking news.
Everything we get stressed, angry, depressed about pales into insignificance.
Our thoughts are with you & your Lass as you do your best to stay strong for her .
Sending best love to you both x
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Our love & positive thoughts winging their way to you, RM x1
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Best wishes RM and so sorry to hear your news Lancashire Lad.2
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All the very best RM. Desperately sorry to read your update Lancs.2
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❤️lancashire lad said:good luck Malc
unfortunately the Lymphoma has beaten The Lass who is now just being kept comfortable, I had hoped that I would get her home but I think she will remain in Southampton Hospital where I shall go tomorrow and stay until the end, unless of course it gets better for a while, but I don't think so. BASTARD DISEASE2 -
Very sad and difficult updates from RM and LL. Thoughts and best wishes with you and your families.6
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So very sorry to read your news @lancashire lad. Please give my love to your lass, and I hope something turns up for her and she can beat this disease xx2
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Sending you every strength to keep fighting @Redmidland.
Heartfelt wishes to you and the Lass @lancashire lad. Such a tough and heartbreaking time xxx2 -
Sending love to you @lancashire lad and your Lass.
Hoping the new chemo zaps your golfball @Redmidland2 -
@lancashire lad so sorry to hear your news.1
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Feck it @lancashire lad my love to you and your beloved Lass ♥️1
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So sad for you and the Lass @lancashire lad.
sending you both love x1 -
I remember being shown the XRay of my lymphoma.Redmidland said:I went to see my Oncologist on Friday, after having my operation cancelled. We sat and discussed different options of chemo that might not have as detrimental effect on me as it did last September. This would involve a different drug given as a 5 hr infusion in my chest, then a break for 3 weeks before going back to hospital again for another 5 hr infusion. This would happen 4 times.
Sadly, there is no guarantee this will work, and on Friday I was not only told, but, for the first time ever, shown, that whilst the tumour hasn't spread it has grown to the size of a golf ball in my pelvic region. This is what is now causing the pain I experience on a daily basis, with my pain killers now increased, to help me cope.
Basically I'm back to where I was July 23 when first diagnosed. If the chemo works they'll then operate to remove the rest of it, if not, then they aren't sure what else can be done.
It was strange staring at my tumour, it's a black and white mass, close to my prostrate.
I had an immense feeling of hatred for the tumour, yet, I was hating my own body!
I'm trying to stay positive and concentrating my MH on the tumour, with everything I can.
I'm going to give it my best shot and hope the chemo works with me and not against me.
In the meantime I hope CAFC keep winning and I can win alongside them
Live, Love, Laugh and Be Happy xx
##fxxxcancer
I said to the doctor that I didn't like the look of that shadow.
He replied "That's your heart"....7 -
Just back from seeing my surgeon. We met so we could discuss a plan going forward. Sadly they were not expecting the tumour to grow so quickly after the 'radiotherapy' did actually work!
It turns out I have a 'rare' type of bowel cancer, and now its too dangerous to operate.
I'll have a new kind of chemo for 3 months, if the chemo works, they'll operate and remove what's left. If the chemo doesn't work it's not looking good I'm afraid. So another battle begins and one, it seems, I have to win.
Live, Love, Laugh and Be Happy xx
Take care
Malc2 -
Wishing you the best of luck, Malc.
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Keep fighting redmidland i have just returned after seeing my oncologist. After three months on a new chemo it appears the progression has in some places has slowed but not shrunk anything. I have got to wait a week now to see what they decide. Apparently there is a drug un use thats not yet been proved on the NHS in England as cost effective. But if i want to try it privately it wouls cost £2k a month. Not keen1
