it’s not the government setting the extortionate price , the American pharmaceutical firm who make it do . im sure the government would love to be able to give the go ahead and let everyone receive the treatment but it has to be funded somehow .
Of course the pharma firm have to make money and cover all the time spent developing/attemptin to develop these treatments but they also have to get somewhere within the bounds of reasonability
Signed both mate, good luck to yourself, Nicky and your beautiful baby Archie.
If there's a donation page or anything like that I'd be more than happy to donate.
It's not much but I'll share it on my twitter page as there may be Charlton fans on there who haven't seen this and I'll mention it in my next video at Portsmouth to hopefully get a few more names signed up maybe if you don't mind?
All the best again
Edit: do you mind me sharing this on my twitter page before I post?
Signed both mate, good luck to yourself, Nicky and your beautiful baby Archie.
If there's a donation page or anything like that I'd be more than happy to donate.
It's not much but I'll share it on my twitter page as there may be Charlton fans on there who haven't seen this and I'll mention it in my next video at Portsmouth to hopefully get a few more names signed up maybe if you don't mind?
All the best again
Edit: do you mind me sharing this on my twitter page before I post?
Absolutely please do go ahead mate! Brilliant idea!
Signed both mate, good luck to yourself, Nicky and your beautiful baby Archie.
If there's a donation page or anything like that I'd be more than happy to donate.
It's not much but I'll share it on my twitter page as there may be Charlton fans on there who haven't seen this and I'll mention it in my next video at Portsmouth to hopefully get a few more names signed up maybe if you don't mind?
All the best again
Edit: do you mind me sharing this on my twitter page before I post?
Absolutely please do go ahead mate! Brilliant idea!
Nice one, I'll tweet out tomorrow as it's late now so hopefully more people will see then, hopefully with the next video being Portsmouth and them being a reasonable bunch it will get some signs.
Again all the best mate and I really wish you all well
Signed both mate, good luck to yourself, Nicky and your beautiful baby Archie.
If there's a donation page or anything like that I'd be more than happy to donate.
It's not much but I'll share it on my twitter page as there may be Charlton fans on there who haven't seen this and I'll mention it in my next video at Portsmouth to hopefully get a few more names signed up maybe if you don't mind?
All the best again
Edit: do you mind me sharing this on my twitter page before I post?
Absolutely please do go ahead mate! Brilliant idea!
Nice one, I'll tweet out tomorrow as it's late now so hopefully more people will see then, hopefully with the next video being Portsmouth and them being a reasonable bunch it will get some signs.
Again all the best mate and I really wish you all well
Thank you so much mate! This is what being an Addick is all about! 👍🏼
Thank you so much @Braziliance for keeping to your word and mentioning Archie and our story at the end of your video! Hopefully will go a long way to getting some more numbers signed up on the petition!
I was there Saturday down the front. Next away day I will most definitely be buying you a beer (Orient - Boxing Day).
Comments
I'll pass it onto my contacts and also NHS pressure groups on Twitter.
Be interesting to see how many MPs have interests in Vertex from either side of the House.
The good new is you have 3 to 6 years to turn th8s horrible decision around and possibly a more sympathetic Government from 2025.
My sister in law passed away in 2000 aged 32, with cystic fibrosis.
Wishing you all the best.
cblock
it’s not the government setting the extortionate price , the American pharmaceutical firm who make it do .
im sure the government would love to be able to give the go ahead and let everyone receive the treatment but it has to be funded somehow .
Of course the pharma firm have to make money and cover all the time spent developing/attemptin to develop these treatments but they also have to get somewhere within the bounds of reasonability
If there's a donation page or anything like that I'd be more than happy to donate.
It's not much but I'll share it on my twitter page as there may be Charlton fans on there who haven't seen this and I'll mention it in my next video at Portsmouth to hopefully get a few more names signed up maybe if you don't mind?
All the best again
Edit: do you mind me sharing this on my twitter page before I post?
Again all the best mate and I really wish you all well
I hope Archie gets the treatment he needs, he is a smashing looking lad and that price is an utter piss take by the drugs company.
Thanks to @Braziliance for reminding me of this thread in his blog.