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RIP Adam Cave. Charlton til he died.

Valley_floyd_redValley_floyd_red
edited January 2011 in General Charlton
I started working at Brent Knoll School on Mayow Road in Sydenham sometime during 2006. My job there was as a one-to-one learning support for a boy affected with Duchennes muscular dystrophy. In case you don't know, Duchennes is a muscle wasting condition, it's genetic and there is no cure.

Adam was his name, a lovely boy with a mother who should be sainted for what she had to put up with. Adam was a massive Charlton fan, it's more or less why we hit hit it off so quickly and often used to look out for each other at home matches. One season our school was given a season ticket by our wonderful club so children like Adam could go and watch a game.

Living with Duchennes is absolute hell. It's a death sentence. Boys with Duchennes rarely live beyond the age of 18 and if they do what life they have isn't worth living.


Adam died on Christmas eve aged 18. Tomorrow he will be cremated at Honor Oak at 11:30 in a coffin draped in red and white.

I hope you will join me at that time, whistle the Valley floyd road tune, wear your Charlton shirt, tie or donate some money to Action Duchenne in remembrance of a fellow Charlton fan that was never going to make it.


Live love laugh and be happy.
Action Duchenne donation
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Comments

  • stonemusestonemuse
    LLLBH indeed ... RIP
  • shirty5shirty5
    Reading the above should make us all grateful of what we have. Rest in peace
  • Weegie AddickWeegie Addick
    A lovely tribute, VFR.
    RIP Adam.
  • WSSWSS
    edited January 2011
    RIP. VFR will get hummed on my trot to Cannon Street.
  • kentaddickkentaddick
    my ex girlfriend's older brother has muscular dystrophy. He's fighting fit for his age and for the condition he has, but it's incredibly hard on his family and has really affected my ex deeply.

    Rest in peace.
  • StrasburgerStrasburger
    Adam RIP.
  • Floyd MontanaFloyd Montana
    Very moving VFR
    Thanks for letting us know
  • Rufus is a dogs nameRufus is a dogs name
    RIP Adam.

    Will definitely donate something to Action Duchenne.
  • creepyaddickcreepyaddick
    RIP Adam
  • Valley_floyd_redValley_floyd_red
    my ex girlfriend's older brother has muscular dystrophy. He's fighting fit for his age and for the condition he has, but it's incredibly hard on his family and has really affected my ex deeply.

    Rest in peace.
    When I started working with Adam he was in year 9, he couldn't walk but could write and move around. Then, all of a sudden, he deteriorated. Within weeks he could barely raise his arms or sit upright. I thought he was going to die. He didn't though. The amount of support he needed was incredible. His mum used to have to carry him up the the stairs to get him into bed and toilet him which was alright until he got to 14. So I had a wheelchair lifte and a shower installed in the school and I built a ramp so he could take his electric wheelchair home. It was all too much for his family to do, they never got the help and support they needed, physically, socially, psychologically they were left to get on with it.
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  • bigstemarrabigstemarra
    I am glad that he had you to help him as well as his family, VFR...you should be very proud of what you did for him. You must be devastated.

    RIP Adam.
  • kentaddickkentaddick
    [cite]Posted By: Valley_floyd_red[/cite]
    my ex girlfriend's older brother has muscular dystrophy. He's fighting fit for his age and for the condition he has, but it's incredibly hard on his family and has really affected my ex deeply.

    Rest in peace.

    When I started working with Adam he was in year 9, he couldn't walk but could write and move around. Then, all of a sudden, he deteriorated. Within weeks he could barely raise his arms or sit upright. I thought he was going to die. He didn't though. The amount of support he needed was incredible. His mum used to have to carry him up the the stairs to get him into bed and toilet him which was alright until he got to 14. So I had a wheelchair lifte and a shower installed in the school and I built a ramp so he could take his electric wheelchair home. It was all too much for his family to do, they never got the help and support they needed, physically, socially, psychologically they were left to get on with it.

    i'd get woken up by shouts from her brother's room to his parents to turn him over in the middle of the night. 24 hour attention. They've made sure the entire downstairs is wheelchair accesable with a disabled toilet next to his room on the ground floor and doors that open both ways. They've spent so much of their energy and money on changing the house, now they want to sell but no one will buy because of the amount of money that has to go into changing the house back into being "normal". Poor guys. The guy himself is a brilliant inspiration though, organises all the wheelchair football games at his school and tries his best to get on with his life independently.
  • CharltonKerryCharltonKerry
    RIP Adam.
  • Valley_floyd_redValley_floyd_red
    i'd get woken up by shouts from her brother's room to his parents to turn him over in the middle of the night. 24 hour attention. They've made sure the entire downstairs is wheelchair accesable with a disabled toilet next to his room on the ground floor and doors that open both ways. They've spent so much of their energy and money on changing the house, now they want to sell but no one will buy because of the amount of money that has to go into changing the house back into being "normal". Poor guys. The guy himself is a brilliant inspiration though, organises all the wheelchair football games at his school and tries his best to get on with his life independently.
    I think when you're in that situation you have no choice other that to just get on with things. Living with a Duchenes child is just a constant worry. Every time Adam got a cold he would have to go to hospital. In the end it was a chest infection that killed him.

    I like to remember all the good times we had though, I once took him absailing (that's right, try going over the side of a cliff with a teenage boy in a wheelchair! It was brown pants time for me) and he loved it. We had so many laughs together, that's what I'll remember.
  • Folev the redFolev the red
    RIP Adam.
    I never previously knew of this condition, but it puts it all into prespective.
  • Red5Red5
    [cite]Posted By: Valley_floyd_red[/cite]Adam died on Christmas eve aged 18. Tomorrow he will be cremated at Honor Oak at 11:30 in a coffin draped in red and white.

    I hope you will join me at that time, whistle the Valley floyd road tune, wear your Charlton shirt, tie or donate some money to Action Duchenne in remembrance of a fellow Charlton fan that was never going to make it.


    Live love laugh and be happy.

    My Grandma was cremated at Honor Oak a few months ago, aged 96, so Adam will be in good company. RIP Adam. RIP Grandma.
  • Valley_floyd_redValley_floyd_red
    And thanks everybody for your kind words. I really thought posting something on here about Adam was the right thing to do. He really did love Charlton.
  • TELTEL
    Very sad......reading this sort of stuff will always hit a nerve with me....I feel a bit choked now, even though I dont know the people involved....Rest in peace young man.....Hopefully Charlton are faring better where you are now....
  • StigStig
    A very moving post. I never knew they guy, but I'll think of him tomorrow.
  • ChicagoAddickChicagoAddick
    RIP Adam, and V_f_r I admire you greatly.
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  • RedmidlandRedmidland
    VFR you should be very proud of what you did in Adams short life. I dont know you and of course never met Adam but your story of Adam and his family is most touching and sad, but as you say you will remember the good times.
    My condolonces to Adams family and of course yourself....I will stop whatever I'm doing at 11:30 tomorrow and sing the Valley Floyd Road song as best I can.
    RIP Adam
  • March51March51
    Sometimes there just aren't the words, are there: so I'll echo Redmidland's and also sing at 11.30.

    Rest in peace, Adam.
  • mistrollinginmistrollingin
    What March said. RIP.
  • ellisaddickellisaddick
    VFR very moving RIP Adam, Have you told the club so they can do something?
  • cafc_se7cafc_se7
    Very sad story!RIP Adam!
  • WestSussexAddickWestSussexAddick
    [quote][cite]Posted By: Valley_floyd_red[/cite]And thanks everybody for your kind words. I really thought posting something on here about Adam was the right thing to do. He really did love Charlton.[/quote]

    Posting this was certainly the right thing to do. I just puts everything into perspective and goes to show that we really have nothing to moan about. Well done for giving that young man and his family so much.
    RIP Adam.
  • cafcdan18cafcdan18
    A very moving and tragic story.

    RIP Adam.
  • sadiejane1981sadiejane1981
    Okay had me in tears RIP Adam, May you be an inspiration to us all. Thoughts are with the family x
  • RodneyCharltonTrottaRodneyCharltonTrotta
    RIP Adam. Thoughts are with you and his family VFR
  • Henry IrvingHenry Irving
    Very moving. Thank you for sharing.

    Pls contact matt.wright@cafc.co.uk so Adam's name can be included in this years minutes applause

    LLLBH
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