mum update is shes now had a picc line fitted as the constant needles were wrecking her arms:
Brachytherapy 8am-8pm at Maidstone
3rd June
10th June
17th June
Week of 28th July - meeting with oncology dr end of September full set
of scans ( pet/mri/ct )
my heart goes out to all affected by this horrible disease and that goes out to @Redmidland i don't know you but it brings a tear to my eye that a fellow Addick is suffering although i think your attitude is fantastic lets get that win Sunday for you 1st up!.
Hi all, well I'm going to need your collective thoughts, prayers, ideas and help. Yesterday, in a telephone conversation with my Oncologist, she told me I have about a year, maybe shorter or longer but that's the prognosis. I was stunned, how can I go into hospital with a UTI and arse infection, stay in there 11 weeks and, discharge myself and come out with a shortened lifespan. No one picked up on the arse infection and the fact that it wasn't, it was the tumour pushing out my bum. Hence I can't sit down or see any of life. To say I'm fucking angry is an understatement. Any experts on here, after Sunday of course as I want to think about something different, that might be able to help? Medical Negligence, or second opinions etc. I went into hospital with a tumour that was shrinking and a UTI, 11 weeks later the tumour has spread to liver/lungs. I'm upset and scared, I'll fight as hard as I can, but help is needed, the power of positive mind in nothing else. Cheers Malc Live, Love, Laugh and Be Happy xx
You have been so strong mate … keep up the battle … easy for me to say but fighting rather than struggling will help you mentally … nowhere close to your circumstances, but that is what got me through bowel cancer a few years ago
I'm humbled by your mere presence on this board and matter of fact ways you talk about it, given your current situation, I would want to shut the world out, you are a much stronger person than I.
I'm humbled by your mere presence on this board and matter of fact ways you talk about it, given your current situation, I would want to shut the world out, you are a much stronger person than I.
I'm humbled by your mere presence on this board and matter of fact ways you talk about it, given your current situation, I would want to shut the world out, you are a much stronger person than I.
mum update is shes now had a picc line fitted as the constant needles were wrecking her arms:
Brachytherapy 8am-8pm at Maidstone
3rd June
10th June
17th June
Week of 28th July - meeting with oncology dr end of September full set
of scans ( pet/mri/ct )
my heart goes out to all affected by this horrible disease and that goes out to @Redmidland i don't know you but it brings a tear to my eye that a fellow Addick is suffering although i think your attitude is fantastic lets get that win Sunday for you 1st up!.
That's good (having the pic line fitted)....unfortunately there were several occasions where no one knew how to use it (not at Maidstone but at Livingstone and DV)....best wishes to your mum PH.
Malc, your anger sounds fully justified - and although I know nothing about how to achieve it, I think a second opinion from a specialist cancer unit (somewhere like Royal Marsden) would be a good next step. I'm sure you would need a second opinion anyway, if you wanted to pursue the medical negligence route - so might as well aim for one in which you would have more confidence.
This week, on Radio 4 "Woman's Hour" there have been slots about both UTIs & bowel cancer - might be worth a listen on BBC Sounds? I found the one on UTIs particularly though-provoking.
Let's all hope the team turn up in full force on Sunday and give all Addicks reason to not only live but also to laugh and be happy!
I've procrastinated in posting after reading your devastating news as, not for the first time, I felt unable to find the appropriate words.
But that's just selfish of me, of course.
I cannot begin to understand how you are feeling at this moment in time, but I know that anger would be my first reaction. How could this not have been picked up much sooner & treated accordingly ? A 2nd opinion is needed ASAP - that would be a positive step to get the ball rolling & needs to happen NOW.
It would seem that errors have been made in your treatment & as such, who knows whether the prognosis you've been handed is questionable too. You deserve SO much more and have every right to demand answers and further investigation.
You have been a true warrior, fighting against your health issues from Day 1.
Now it's time for the NHS to pull out all the stops for YOU. Don't take no for an answer.
And please don't forget that we're fighting with you if you'll let us.
It goes without saying that you'll be in our minds & our hearts on Sunday, dear friend.
The Lass was partly treated at the Royal Marsden and it helped her survive longer, I wish you luck and fortitude in your fight and will be thinking of you on Sunday at Wembley.
I said very little (f*** all really) when Wally (Malcolm) told us me and @DaveStorry this on the phone Thursday based on my theory of “if you can’t say nothing constructive then best shut your mouth” Ive cried many a tear for Wally before and since that call, but nothing I do will change what he’s going through, what I can do is be there on the end of a phone or when he’s ready I’ll drag my sorry backside t’up norf to the arse end of nowhere and visit. I’m not going to be sad with him when I see him and I expect him to be the same with me, we’ll rip each other to bits.
If we don’t then we aren’t being true to each other and that’s something we’ve always been since we were first introduced to each other. (and when I find the f***** responsible for that I’ll swing for him 😉)
I never had a brother, but in truth I have two from other mothers. Wally and @DaveStorry won’t be with me physically on Sunday but they’ll every step of way from my home down here it was Wally that gave me the kick up arse to venture up.
We WhatsApp each other daily we don’t always get or give a response but wish the three of us the best day possible and that won’t change.
I dragged out the photo from our Wembley trip last time and a more recent one of us all out for a beer, truth is none of us have aged well. 😉
Well was at home against Wycombe. Was supposed to be flying home from Benidorm break tomorrow , for final Sunday. However small dark
spot on my lung been investigating a few months turned out to be cancer. Offered me today for the Op as opposed to 4-6 weeks time. Careful consideration. I’m in Guys was done this morning, so it’s a TV watch for me. On top of the game got about £1000 to come if we promoted. All. Gone well….. so cheering boys on from 9th floor Guys on Sunday…
I don’t know what to say Malc except your post has me in tears. Really feel for you and your family and I send my love, prayers and best wishes. Stay strong, my CL friend
Comments
Best wishes to you and your family.
mum update is shes now had a picc line fitted as the constant needles were wrecking her arms:
Brachytherapy 8am-8pm at Maidstone
3rd June
10th June
17th June
Week of 28th July - meeting with oncology dr end of September full set of scans ( pet/mri/ct )
my heart goes out to all affected by this horrible disease and that goes out to @Redmidland i don't know you but it brings a tear to my eye that a fellow Addick is suffering although i think your attitude is fantastic lets get that win Sunday for you 1st up!.
Yesterday, in a telephone conversation with my Oncologist, she told me I have about a year, maybe shorter or longer but that's the prognosis.
I was stunned, how can I go into hospital with a UTI and arse infection, stay in there 11 weeks and, discharge myself and come out with a shortened lifespan.
No one picked up on the arse infection and the fact that it wasn't, it was the tumour pushing out my bum. Hence I can't sit down or see any of life. To say I'm fucking angry is an understatement.
Any experts on here, after Sunday of course as I want to think about something different, that might be able to help? Medical Negligence, or second opinions etc.
I went into hospital with a tumour that was shrinking and a UTI, 11 weeks later the tumour has spread to liver/lungs.
I'm upset and scared, I'll fight as hard as I can, but help is needed, the power of positive mind in nothing else.
Cheers Malc
Live, Love, Laugh and Be Happy xx
I hope someone can help you but in the meantime we’re all here for you ❤️
This week, on Radio 4 "Woman's Hour" there have been slots about both UTIs & bowel cancer - might be worth a listen on BBC Sounds? I found the one on UTIs particularly though-provoking.
Let's all hope the team turn up in full force on Sunday and give all Addicks reason to not only live but also to laugh and be happy!
But that's just selfish of me, of course.
I cannot begin to understand how you are feeling at this moment in time, but I know that anger would be my first reaction. How could this not have been picked up much sooner & treated accordingly ? A 2nd opinion is needed ASAP - that would be a positive step to get the ball rolling & needs to happen NOW.
It would seem that errors have been made in your treatment & as such, who knows whether the prognosis you've been handed is questionable too. You deserve SO much more and have every right to demand answers and further investigation.
You have been a true warrior, fighting against your health issues from Day 1.
Now it's time for the NHS to pull out all the stops for YOU. Don't take no for an answer.
And please don't forget that we're fighting with you if you'll let us.
It goes without saying that you'll be in our minds & our hearts on Sunday, dear friend.
And wishing that you could be with us .
Sending best love now, and always.
Ive cried many a tear for Wally before and since that call, but nothing I do will change what he’s going through, what I can do is be there on the end of a phone or when he’s ready I’ll drag my sorry backside t’up norf to the arse end of nowhere and visit.
I’m not going to be sad with him when I see him and I expect him to be the same with me, we’ll rip each other to bits.
(and when I find the f***** responsible for that I’ll swing for him 😉)
I never had a brother, but in truth I have two from other mothers.
Wally and @DaveStorry won’t be with me physically on Sunday but they’ll every step of way from my home down here it was Wally that gave me the kick up arse to venture up.
spot on my lung been investigating a few months turned out to be cancer. Offered me today for the Op as opposed to 4-6 weeks time. Careful consideration. I’m in Guys was done this morning, so it’s a TV watch for me. On top of the game got about £1000 to come if we promoted. All. Gone well….. so cheering boys on from 9th floor Guys on Sunday…
Im with you Redmidland keep positive as you can.
COYR