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Lifers' Cancer Updates - Some hopeful news from Palarsehater (p75)

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Comments

  • lordromford
    lordromford Posts: 7,768
    @Redmidland so sorry to read your news. Best wishes to you and your family. x
  • limeygent
    limeygent Posts: 3,217
    Pulling for you RM, all the best to you.
  • red10
    red10 Posts: 833
    Very best wishes to you and yours, hang tough and give it a fcuking hard poke in the eye !!
  • Shrew
    Shrew Posts: 5,749
    Sorry to hear your news RM. Keep enjoying all the moments with your family and the Charlton wins, finding strength n laughter
  • DA9
    DA9 Posts: 11,091
    I thought of you at the final whistle, that one was for you Malcolm 
  • LoOkOuT
    LoOkOuT Posts: 10,853
    I join everyone else in wishing you the best Malc. We’re all pulling for you.
  • N01R4M
    N01R4M Posts: 2,577
    Thought of you, Malc, when the ball went in the net - hope you were able to watch the stream.
    Best wishes to you and your family.
  • palarsehater
    palarsehater Posts: 12,296
    edited May 22

    mum update is shes now had a picc line fitted as the constant needles were wrecking her arms:

    Brachytherapy 8am-8pm at Maidstone 

    3rd June 

    10th June 

    17th June 

    Week of 28th July - meeting with oncology dr end of September full set of scans ( pet/mri/ct )


    my heart goes out to all affected by this horrible disease and that goes out to @Redmidland i don't know you but it brings a tear to my eye that a fellow Addick is suffering although i think your attitude is fantastic lets get that win Sunday for you 1st up!. 

  • Redmidland
    Redmidland Posts: 44,700
    DA9 said:
    I thought of you at the final whistle, that one was for you Malcolm 
    That post @DA9 made me cry
  • Redmidland
    Redmidland Posts: 44,700
    Hi all, well I'm going to need your collective thoughts, prayers, ideas and help.
    Yesterday, in a telephone conversation with my Oncologist, she told me I have about a year, maybe shorter or longer but that's the prognosis.
    I was stunned, how can I go into hospital with a UTI and arse infection, stay in there 11 weeks and, discharge myself and come out with a shortened lifespan.
    No one picked up on the arse infection and the fact that it wasn't, it was the tumour pushing out my bum. Hence I can't sit down or see any of life. To say I'm fucking angry is an understatement.
    Any experts on here, after Sunday of course as I want to think about something different, that might be able to help? Medical Negligence, or second opinions etc.
    I went into hospital with a tumour that was shrinking and a UTI, 11 weeks later the tumour has spread to liver/lungs.
     I'm upset and scared, I'll fight as hard as I can, but help is needed, the power of positive mind in nothing else.
    Cheers Malc
    Live, Love, Laugh and Be Happy xx

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  • Redmidland
    Redmidland Posts: 44,700
    N01R4M said:
    Thought of you, Malc, when the ball went in the net - hope you were able to watch the stream.
    Best wishes to you and your family.
    More tears xx
  • KBslittlesis
    KBslittlesis Posts: 8,588
    Oh Malc, that seems so fecking unfair.
    I hope someone can help you but in the meantime we’re all here for you ❤️
  • stonemuse
    stonemuse Posts: 33,995
    You have been so strong mate … keep up the battle … easy for me to say but fighting rather than struggling will help you mentally … nowhere close to your circumstances, but that is what got me through bowel cancer a few years ago 
  • ElfsborgAddick
    ElfsborgAddick Posts: 29,024
    DA9 said:
    I'm humbled by your mere presence on this board and matter of fact ways you talk about it, given your current situation, I would want to shut the world out, you are a much stronger person than I.
    I endorse that.
  • Horsfield9
    Horsfield9 Posts: 3,082
    DA9 said:
    I'm humbled by your mere presence on this board and matter of fact ways you talk about it, given your current situation, I would want to shut the world out, you are a much stronger person than I.
    Don't know what to say,  but this sums it up.
  • HastingsRed
    HastingsRed Posts: 1,579

    mum update is shes now had a picc line fitted as the constant needles were wrecking her arms:

    Brachytherapy 8am-8pm at Maidstone 

    3rd June 

    10th June 

    17th June 

    Week of 28th July - meeting with oncology dr end of September full set of scans ( pet/mri/ct )


    my heart goes out to all affected by this horrible disease and that goes out to @Redmidland i don't know you but it brings a tear to my eye that a fellow Addick is suffering although i think your attitude is fantastic lets get that win Sunday for you 1st up!. 

    That's good (having the pic line fitted)....unfortunately there were several occasions where no one knew how to use it (not at Maidstone but at Livingstone and DV)....best wishes to your mum PH.
  • N01R4M
    N01R4M Posts: 2,577
    Malc, your anger sounds fully justified - and although I know nothing about how to achieve it, I think a second opinion from a specialist cancer unit (somewhere like Royal Marsden) would be a good next step.  I'm sure you would need a second opinion anyway, if you wanted to pursue the medical negligence route - so might as well aim for one in which you would have more confidence.

    This week, on Radio 4 "Woman's Hour" there have been slots about both UTIs & bowel cancer - might be worth a listen on BBC Sounds?   I found the one on UTIs particularly though-provoking.

    Let's all hope the team turn up in full force on Sunday and give all Addicks reason to not only live but also to laugh and be happy!
  • Redmidland
    Redmidland Posts: 44,700
    Thanks @NO1R4M I'll take a listen, and the Royal Marsden, is worth try 

  • Fanny Fanackapan
    Fanny Fanackapan Posts: 18,735
    I've procrastinated in posting after reading your devastating news as, not for the first time, I felt unable to find the appropriate words.

    But that's just selfish of me, of course.

    I cannot begin to understand how you are feeling at this moment in time, but I know that anger would be my first reaction. How could this not have been picked up much sooner & treated accordingly ? A 2nd opinion is needed ASAP - that would be a positive step to get the ball rolling & needs to happen NOW.

     It would seem that errors have been made in your treatment & as such, who knows whether the prognosis you've been handed is questionable too. You deserve SO much more and have every right to demand answers and further investigation. 

    You have been a true warrior, fighting against your health issues from Day 1. 

    Now it's time for the NHS to pull out all the stops for YOU. Don't take no for an answer. 

    And please don't forget that we're fighting with you if you'll let us. 

    It goes without saying that you'll be in our minds & our hearts on Sunday, dear friend. 

    And wishing that you could be with us .

    Sending best love now, and always. <3 
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  • lancashire lad
    lancashire lad Posts: 15,624
    The Lass was partly treated at the Royal Marsden and it helped her survive longer, I wish you luck and fortitude in your fight and will be thinking of you on Sunday at Wembley.
  • RaplhMilne
    RaplhMilne Posts: 4,601
    edited May 23
    Well was at home against Wycombe. Was supposed to be flying home from Benidorm break tomorrow , for final Sunday. However small dark

    spot on my lung been investigating a few months turned out to be cancer. Offered me today for the Op as opposed to 4-6 weeks time. Careful consideration. I’m in Guys was done this morning, so it’s a TV watch for me. On top of the game got about £1000 to come if we promoted. All. Gone well….. so cheering boys on from 9th floor Guys on Sunday… 

    Im with you Redmidland keep positive as you can.

    COYR
  • Covered End
    Covered End Posts: 51,982
    Best wishes to all.
  • _MrDick
    _MrDick Posts: 13,103
    edited May 24
    I don’t know what to say Malc except your post has me in tears. Really feel for you and your family and I send my love, prayers and best wishes. Stay strong, my CL friend
  • KBslittlesis
    KBslittlesis Posts: 8,588
    edited May 23
    Thinking of you too @RaplhMilne ♥️
  • Fanny Fanackapan
    Fanny Fanackapan Posts: 18,735
    Thinking of you too @RaplhMilne ♥️
    Sending love & hugs, RM x
  • redman
    redman Posts: 5,285
    Words almost fail me @Redmidland All I can say is try and stay positive, don't forget your not alone. You're in our thoughts and prayers. 
  • Peter_G
    Peter_G Posts: 839
    edited May 24
    My heart goes out to you @Redmidland with the horrible outcomes that you’re having to deal with. It certainly puts things into perspective.

    My own recovery from cancer surgery (kidney removal in Feb) seems to be mainly ok: my kidney function is fine, and I will have a follow up CT scan in June to see if there has been metastasis, but none was evident in the post op pathology. However, I have been laid low by three bad URTIs in recent weeks, the last of which was a particularly nasty viral chest infection which has left me so short of breath I am now on the brown and blue inhalers for the first time in my life. The breathlessness is bad at night, to the extent I am now sleep deprived and generally knackered.

    I have got tickets for tomorrow, with my two sons, my daughter and my grandson (who will be travelling with his dad from Hinckley for the occasion). I just hope I’ll have enough puff to get me from the Wembley car parks to the stadium.

    My thoughts, along with dozens of other lifers, will be with you tomorrow @Redmidland. This one’s for you mate. CoyA.
  • Redmidland
    Redmidland Posts: 44,700
    @Peter_G, I'm sorry to hear you have a UTI they are really nasty and can affect every part of your life. I hope you get over it soon mate and can get to Wembley.
    However, your grandson and his dad are travelling from Hinckley? Is that the one in Leicestershire? If so, that's where I live!! Abd have done for the last 18 years!
    Stay safe my friend and enjoy the day!